***ROLL UP, ROLL UP! IMPORTANT NEWS***
***Tynwald Day Report***
***Tales of the Unexpected: Healing Against the Odds - IT'S NEARLY HERE!***
***Important information on benefits for those currently too sick to work***
Welcome to Without Wing's latest blog! We have SO much information to share with you!
First up - TYNWALD DAY REPORT!
It was AMAZING to have so many people approach us at Tynwald. A real privilege. This charity was designed so that people living with these illnesses could have a powerful point of support and representation. We want people to therefore feel free approach us, to share with us their inspirational stories, and, if ever 'without wings,' either physically, or emotionally, to know that any request for compassionate help is completely confidential.
We raised £146 at Tynwald Day through smoothie and no junk energy snack sales, our decorate the Lula Comp (in which we had 18 entries!), and the Big Ball Balancing Game! This was, of course, fantastic and made for a very busy and exciting day! However, we are still finding that these diseases are misunderstood. With these illnesses affecting so many people locally (approximately 1-1.5% of the adult population, 1 in a 1000 for children), and most commonly first striking at working / child bearing age, Without Wings is working hard to challenge common misperceptions. We therefore hope that we also raised a ton of awareness - something we will continue to do as the charity grows and develops.
The Decorate the Lula comp proved too much of a challenge for our wonderful judges! The final decision was that they couldn't choose a winner because each entry was "so individual and demonstrated a high level of effort." We will therefore be featuring each entry in turn as our Facebook profile picture over the coming few months. A splendid solution!
The Big Ball Balancing was intended to highlight both the importance, and the challenges of movement. Anyone who balanced over 6 seconds won a prize, though by the end of the day there were a few entrants who had mastered the art so well that we ran out of prizes and had to be reward them with extra time instead! It was a lot of fun but apologies to all the stall holders close by as we were quite noisy!
So whilst we're on the subject of movement...
Movement can be a sensitive topic for people living with autoimmune arthritis. There can be a lot of grieving involved, and a lot of frustration when told how important it is to exercise - especially if joints are severely affected. However, the fact remains that it is crucial to move those joints - move it or lose it so the saying goes. Yet what is the best way to keep our joints as healthy as possible? Without Wings therefore recently approached local naturopath, Jamie Wray, and asked him to write us a blog on the subject.
Jamie is one half of husband and wife team,
who, amongst other things, (like Jacqui Kelly's incredible massage skills!) are yoga experts. We've received the draft and are very excited to say it is super interesting, treating the subject of movement quite differently to how you might expect! It'll be launched as a blog in the beginning of August, so please keep a look out.
And although the blog is not actually about yoga, whilst we've loosely mentioned the word...
***Tales of the Unexpected: Natural Healing Against the Odds!***
IT'S ONLY A WEEK AWAY!
Here at Without Wings we are so excited! One of our speakers, Andy, is now an EXPERT at bikram yoga and he has promised a demo during his talk. We hope he keeps to his word too because Andy, who has a diagnosis of both PsA and RA, was, not that long ago, wheelchair bound by his disease. He is such an incredibly inspirational person and of course will be joined by the gorgeous Danny Preil from the Netherlands. Danny's story can be found under 'Inspirational Stories'...
IF YOU ARE DRAWN TO THIS EVENT IN ANY WAY, PLEASE COME! Tickets available on the link above.
There is so much conflicting and confusing information regarding natural healing out there, and practically everyone with these illnesses gets fed up with annoying advice from well meaning friends and relatives.
Here at Without Wings we are interested in exploring one thing and one thing only : RESULTS. What is fantastic about these 2 guys is they've both been very sick, have followed the same programme - The Paddison Programme for Rheumatoid Arthritis, have had ups and downs in their healing, and they've both had to work hard. We are desperate to pick their brains. How hard is it? How easy! Is it just about food and what challenges have they met along the way? Most importantly, is it for everyone? Having them over to speak was too good an opportunity to miss. If the event proves a success we will invite other speakers in the future. The talk is entirely not for personal profit. The £12 ticket fee is to cover costs only.
And hot off the press!
The lovely Emma Lynch of Port Erin's vegan bakery, Flour Power, has offered to donate plant based snacks for everyone to enjoy at the event! You can find out more about her venture by clicking the link below. This event is going to be great!
AND ALSO HOT OFF THE PRESS! We've managed to secure an interview with Clint Paddison himself, devisor of the Paddison Programme for Rheumatoid Arthritis!!! In order to recover from his own RA, Clint spent 5 years perfecting the programme that Danny and Andy follow. He is now doing very well indeed. More about Clint though on Saturday when we'll LAUNCH THE INTERVIEW HERE in an extra special blog!!!
In other news...
BENEFITS! We said we'd get this info up on our information page a while ago, so HUGE apologies. It's taken longer than expected. It'll be loaded today, so do have a look if you are currently in that situation. One of the things that seems to be stumping people is how to get these forms filled in and processed efficiently. We have therefore contacted social services and have a located a number people can phone to gain access to help with filling out their forms. It will all go on our information page.
We really hope this is useful. It would appear that there are several types of benefits so finding the right one is obviously important.
And last but by no means least,
Thank you to Inner Wheel, Douglas Golf Club Ladies and Manx Telecom, who have all donated to Without Wing's recently. We are so grateful. Our services are being used now, so every bit is very valuable to us. Many, many thanks.