THE HAXBY FAMILY HAVE ORGANISED A CHARITY CAR WASH AT THE GRANDSTAND THIS SATURDAY, 10am-4pm. ALL PROCEEDS WILL BE IN AID OF WITHOUT WINGS! THANK YOU SO MUCH CAT, 9 YEAR OLD RIO (who lives with JIA), AND THE REST OF YOUR WONDERFUL FAMILY!
PRICES START AT £5 SO PLEASE POP DOWN IF YOU WOULD LIKE YOUR CAR WASHED! IF YOU DON'T YOU CAN ALWAYS DONATE ON CAT'S JUST GIVING PAGE HERE: www.justgiving.com/fundraising/Cat-Haxby
Happy Springtime everyone! Welcome to our latest blog and here's hoping you've all popped up the mountain to enjoy a bit of seasonal snow!
Although JIA awareness was our February campaign, the JIA affected families are still ensuring it continues to tick on! Well done to Cat and Rio for organising the above event! We are so grateful - and thank you too, Cat, for promoting Without Wings on Manx Radio today. The Megson family also wanted to share their story, so fingers crossed, this should be appearing soon in a paper near you :)
This month has been relatively calm otherwise, giving us time to sit back, organise a few loose ends and also begin to plan for forthcoming events.
So here's what Without Wing's have been up to throughout March!
Calling cards were recently sent to the latest GP meeting, so hopefully these will now be in a surgery near you! They are something that anyone who wishes to know more about autoimmune arthritis and Without Wing's work - sufferers, their friends or family members, can pick up and stick in their wallet. As well as website and Facebook page details, they also contain our email address and are instantly recognisable by Lula, our beautiful bird. Incidentally, Lula, it would appear, is a bluebird! As such she represents happiness, wellness and Spring :) So here's to all of that!
Leaflets and posters are now prepped too and coming soon. A lot of thought had to go into these as they needed to be correct, so they've taken a little longer. They will also be handed out to GP surgeries and other public places, and, of course, will be taken to the hospital in due course. Please let us know if you haven't seen anything in your surgery by the end of April!
The next batch of information we will be adding to the website, will be about benefits. Though something I'm sure most of us hope we never have to resort to, one of our wonderful supporters who lives with PsA, suggested it would be useful to have concise and relevant information all in one place. We are therefore currently organising this.
Also, for anyone interested in how to help themselves deal with these diseases naturally/ prevent more inflammatory illnesses, Danny Preil from the Netherlands is now booked to come and talk in July! We have set the date for his talk as Sunday 23rd of July, and are now in the process of finding a venue. More information to come on that soon. We are also very excited to announce that Danny, who you can read more about under our 'Inspirational stories', will be joined by Andy Swarbs! Another natural healing success story, Andy lived with both PsA and RA for many years before changing to a low fat, plant based diet with the Paddison Programme for Rheumatoid Arthritis. Whilst natural healing might not be everyone's cup of tea, the tales these pair have to tell are certainly intriguing and we very much hope you will join us!
Thanks to a generous donation from Celton Manx, we have now set up a Just Giving page. Thanks to another kind donation here and the hard efforts of Cat with her charity car wash, the page is proving really worthwhile! You can find it here: www.justgiving.com/withoutwings
Fundraising is essential to our long term plan for the charity. Although, of course, our main focus is on people living with these conditions, these illnesses can frequently be stressful for everyone involved. Without Wings feels our role will therefore eventually develop into a structure that can offer support to the whole family unit. We are currently initiating discussions with MHKs regarding this initiative and will keep you informed as our ideas evolve over the next 12 months. Presently it involves a bit of tweaking, a lot of planning, and lots and lots of fundraising!
Thank you to everyone who has liked and shared our Facebook posts by the way. We are so grateful. Please, please keep doing so. Better awareness means essential earlier diagnosis and treatment. Better awareness also means more support and understanding, and less confusion, frustration and isolation for sufferers, their friends and families. Happy Spring everyone!