Congratulations to Nicola Kermode who just raised £260 for Without Wings by doing the Parish Walk! Thank you so much Nicola! What an amazing effort. It was also an incredible personal achievement for Nicola who has both Lupus (SLE) and Sjogren's.
A wonderful well done all round!
If you still wish to donate, you can find Nicola's just giving page here...
In other news....
This is the first proper blog in a while and we have SO MUCH to talk about!
Ok... so JULY! Without Wings have booked a stall for TYNWALD DAY, 5th July! As well as selling fruit smoothies, we will also be running a colouring/ decorate the Lula competition! This is mainly for kids of course, but big kids can get involved too. The comp will be judged by 2 local artists, including Alice Quayle, who will also have a stall at Tynwald on the day.
The winning picture from the under 16s will be used as Without Wing's SUMMER FACEBOOK PROFILE PIC! Any adult winning picture will get a one week cameo the first week of September. It's just a bit of fun, but with the added benefit of helping to raise awareness of these diseases.
We are hoping to get the black and white image launched on Facebook before the event, just in case you wanted a leisurely attempt at your masterpiece. A photograph of the end result can then either be emailed to us, or you can deliver the original to our stall, but MUST ARRIVE BEFORE 3PM! Entries will cost a £1 on the day, to cover the cost of art materials.
SUNDAY JULY 23RD, 7.30PM AT NOA BAKEHOUSE!
TALE OF THE UNEXPECTED: HEALING AGAINST THE ODDS
Tickets £12 (under 16s go free). (Available on our homepage)
***CHECK OUT OUR FACEBOOK PAGE, AND ALSO OUR ARTICLE IN NEXT MONTH'S MANX TAILS AND HAVE A GO AT THE COMPETITION FOR YOUR CHANCE TO WIN 2 FREE TICKETS! ***
***Closing date: 12th July. Full reimbursement to the winner if tickets already purchased.***
This event is SOOOOOOO exciting! PLEASE PURCHASE YOUR TICKETS SOON! It's also completely non-profit. Without Wings are underwriting the occasion as part of our information drive, but neither Danny nor Andy will be taking a fee. The tickets are £12 to cover costs.
Please please come along. Natural healing is not for everyone, but if you really want to give it a go, you can't put a price on how valuable the information is that these guys have to share. Both Danny and Andy are now completely medication free, pain free, and full of massive energy! They are also just exceptional and wonderful people who have worked very hard to achieve something remarkable, and, they have a LOT to say!
Without Wings are also hoping to publish an interview with the man himself - Clint Paddison which we'll share on our Facebook page. Clint is the devisor of the natural healing programme that Danny and Andy have both followed. He has been completely free of RA for over 5 years, living a full and normal life!
In other news...
Patient Participation Awareness Week!
Yes, that's THIS week! So what is it?
Dr Phil Hammond, GP and broadcaster, says this:
"Patients and carers are the smoke alarms for the frontline of the NHS. They are often first to spot poor care and also have great ideas about how to make care better. They need to be involved in decisions not just about their care, but in designing better care for others."
One thing Without Wing's is passionate about, is INFORMATION for sufferers. It is this that has been the drive behind our recent talks with MHKs and the Department of Health. As representatives of these illnesses, we want all patients to have access to an integrated care document, one which outlines what services are provided both via the NHS and affiliated charities. Currently no such information exists. Not only can this be bewildering and frustrating for patients, but also means that they can miss out on the services provided by 3rd party support - such as ourselves.
We strongly believe that a comprehensive care package should be an ESSENTIAL part of the autoimmune arthritis health care kit. To make this a reality however, we need YOU behind us. What would you like to see in such a document? What NHS/charity information and services have you discovered along your autoimmune arthritis journey that you believe should be highlighted for others to see? LET US KNOW! Without Wings is 100% committed to easing the stress for people living with these illnesses. We can't guarantee anything, but we also won't give up on this one. BE HEARD! This charity exists for YOU!
See you soon everyone! July 5th and July 23rd! We can't wait!